Supporting Gender Identity and Sexual Orientation for Those You Love
PART OF OUR RESOURCE 2024 SERIES: Expanding your options and your community Featuring guest blogger, educator, author, and advocate,...
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8 min read
Age Eighteen: Decisions, Decisions...
PART OF OUR RESOURCE 2024 SERIES: Expanding your options and your community Featuring guest blogger and special needs planning attorney...
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6 min read
Three Pillars of Independence
Guiding Principles for Parents of People with Down Syndrome A while back, Beyond Down Syndrome surveyed parents about their hopes and...
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What Goes on in Their Head?
Adults with Down syndrome often drop subtle clues to their thoughts & dreams "Gwen May Not Speak" I've always been curious about the...
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Noah's Family Bursts with Determination
Early Questions Spark Initiative and Possibilities Noah was born in June 2018, and we had no idea that he was going to have Down...
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7 min read
Age 18: How to Avoid Falling Off the Cliff
Two common predicaments at 18-22 and how to solve them According to many parents, when our self-advocates reach the ages of 18-22 it...
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Introducing the Black Down Syndrome Association
Connecting black families to resources to improve lives in a most fulfilling way March 10, 2019 changed my life forever. The eager...
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Down Syndrome and Dementia: How We All Can Help
Numerous developments over the last few decades have helped extend the average lifespan for people with Down syndrome from 25 to 65+...
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Working with the Professionals
How to Learn, Challenge, Teach, and Partner with Teachers, Doctors, and More As parents, our relationship with teachers, doctors, and...
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Four Essential Tips for New Parents
It's Never Too Early to Prepare for Independence For new parents, independence for their child with Down syndrome may seem like only a...
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The Facts & History of Down Syndrome: just the interesting stuff we should all know
Despite tremendous recent advances in the knowledge and inclusion of those with Down syndrome, there remain many misconceptions even...
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4 min read
The Who, What, When, Where, and How of Independence for our Loved Ones with DS
Independence. It sounds so freeing, so autonomous, and so empowering! Yet when we consider independence in terms of our loved ones with...
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Inclusion: Lifelong Choices Each Family Should Consider
To be honest, "inclusion" was always a sensitive word for us. Sure, as new parents of a beautiful daughter with Down syndrome, we had...
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The Rough Edges of Independence
10 Pitfalls to Prepare for in Advance We may plan for years for independence for our adults with Down syndrome by providing...
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3 min read
Independence Resources for Adults with Down Syndrome
It's never too early...or too late...to plan Through the Beyond Down Syndrome blogs over the last 18 months, we've covered a wide variety...
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A Unique Father-Daughter Bond
How We Played, Teased, Aggravated, and Leaned on Each Other Gwendolyn is nearly 27. She is the oldest of three kids of Steve and...
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Overcoming Down Syndrome Plateaus
What to do when your adult with Down syndrome feels sluggish We all plateau at times. We get kinda sluggish, stuck in a rut, losing some...
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5 Things Parents of Adults with DS Worry About
...and what we can do about them now! Including Cooking with Gwendolyn: French Toast + Sausage...Yum. Being a parent of a child with...
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7 Steps That Can Make a Difference Now
Understanding the Spectrum of Down Syndrome and What We Can Do Now Including Gwendolyn performing "I Am Beautiful" in commemoration of DS...
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6 min read
It's Never Too Early to Prepare for Independence
4 Tips for New Parents For new parents, independence for their child with Down syndrome may seem like only a distant dream. It is so far...
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