5 Common Health Risks to Prepare for Now
The prevalence of these conditions within our community will shock you and become an urgent call to action! In addition to the various...
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4 min read
Dale is Empowered for Independence
Unique Approach Sparks Confidence and Independence In the 1990s I was an educator for adults with learning difficulties. I met loads of...
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6 min read
What Goes on in Their Head?
Adults with Down syndrome often drop subtle clues to their thoughts & dreams "Gwen May Not Speak" I've always been curious about the...
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Noah's Family Bursts with Determination
Early Questions Spark Initiative and Possibilities Noah was born in June 2018, and we had no idea that he was going to have Down...
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Age 18: How to Avoid Falling Off the Cliff
Two common predicaments at 18-22 and how to solve them According to many parents, when our self-advocates reach the ages of 18-22 it...
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Introducing the Black Down Syndrome Association
Connecting black families to resources to improve lives in a most fulfilling way March 10, 2019 changed my life forever. The eager...
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Sibling Relationships & Responsibility
Maddie shares her personal story of love & duty in our first Family Feature "This is Maddie, my big-little sister!” Gwendolyn exclaims...
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Celebrate WDSD with your Essential Guide
Independence is for everyone: get the guidance to develop your roadmap and make it happen! Life is Full of Surprises Unplanned events are...
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Down Syndrome and Dementia: How We All Can Help
Numerous developments over the last few decades have helped extend the average lifespan for people with Down syndrome from 25 to 65+...
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Four Essential Tips for New Parents
It's Never Too Early to Prepare for Independence For new parents, independence for their child with Down syndrome may seem like only a...
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5 Strategies to Achieve Self-Sufficiency
As many of you know, I've been deeply engaged in The UPLifting Guidebook Project to help guide parents and caregivers in the pursuit of...
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The Who, What, When, Where, and How of Independence for our Loved Ones with DS
Independence. It sounds so freeing, so autonomous, and so empowering! Yet when we consider independence in terms of our loved ones with...
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Inclusion: Lifelong Choices Each Family Should Consider
To be honest, "inclusion" was always a sensitive word for us. Sure, as new parents of a beautiful daughter with Down syndrome, we had...
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Independence Resources for Adults with Down Syndrome
It's never too early...or too late...to plan Through the Beyond Down Syndrome blogs over the last 18 months, we've covered a wide variety...
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Move Out: Triumph or Tragedy?
After 6 weeks apart, it's time to assess Last month was the culmination of years of effort by Gwendolyn and our family. After years of...
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Gwendolyn Moves Out
How it feels when it really happens... For Gwendolyn and our family we believe, as with her siblings, she can have it all. Each would...
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A Unique Father-Daughter Bond
How We Played, Teased, Aggravated, and Leaned on Each Other Gwendolyn is nearly 27. She is the oldest of three kids of Steve and...
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Don't Listen to the Naysayers - Help is Coming
Person-Centered Planning and an Independence Guidebook help lead the way Discard the Naysayers From the moment we discover we had a baby...
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Overcoming Down Syndrome Plateaus
What to do when your adult with Down syndrome feels sluggish We all plateau at times. We get kinda sluggish, stuck in a rut, losing some...
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5 Things Parents of Adults with DS Worry About
...and what we can do about them now! Including Cooking with Gwendolyn: French Toast + Sausage...Yum. Being a parent of a child with...
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